Table 1 Demographic/other characteristics of survey respondents
Characteristic | Online survey | Online discussion groups |
|---|---|---|
N = 165 | N = 12 | |
Responses completed on behalf of – n (%) | ||
Themselves | 149 (90.3) | 12 (100) |
Other | 14 (8.5) | 0 (0) |
Child with vitiligo | 13(92.9) | |
Spouse with vitiligo | 1 (7.1) | |
Themselves and other(s) | 2 (1.2) | 0 (0) |
Unknown | 0 (0) | 0 (0) |
Age – n (%) | ||
<5 years | 1 (0.6) | 0 (0) |
5-16 years | 10 (6.1) | 1 (8.3) |
17-30 years | 17 (10.3) | 2 (16.7) |
31-45 years | 43 (26) | 3 (25) |
46-65 years | 55 (33.3) | 3 (25) |
> 65years | 29 (17.6) | 3 (25) |
Unknown | 10 (6.1) | 0 (0) |
Ethnicity- n (%) | ||
White British | 117 (70.9) | 9 (75) |
White Irish | 1 (0.6) | 0 (0) |
Other White Background | 15 (9.1) | 0 (0) |
Any Other Mixed Background | 1 (0.6) | 0 (0) |
Indian/British Indian | 9 (5.5) | 1 (8.3) |
Pakistani/British Pakistani | 1 (0.6) | 0 (0) |
Bangladeshi/British Bangladeshi | 2 (1.2) | 1 (8.3) |
Caribbean/British Caribbean | 1 (0.6) | 1 (8.3) |
African/British African | 1 (0.6) | 0 (0) |
Other | 7 (4.2) | 0 (0) |
Unknown | 10 (6.1) | 0 (0) |
Country of residence – n (%) | ||
UK | 135 (81.8) | 11 (91.7) |
USA | 12 (7.3) | 1 (8.3) |
Europe (excluding UK) | 3 (1.8) | 0 (0) |
Australia | 1 (0.6) | 0 (0) |
Asia | 1 (0.6) | 0 (0) |
Dual – UK and Other | 2 (1.2) | 0 (0) |
Unknown | 11 (6.7) | 0 (0) |
Duration of Diagnosis- n (%) | ||
6-12 months | 3 (1.9) | 0 (0) |
1-2 years | 3 (1.9) | 0 (0) |
2-5 years | 12 (7.7) | 2 (16.7) |
5-10 years | 26 (16.8) | 1 (8.3) |
> 10 years | 111 (71.6) | 9 (75) |
Percentage of skin affected (estimate) - n (%) | ||
0-10% | 37 (23.3) | 1 (8.3) |
10-25% | 49 (30.8) | 4 (33.3) |
25-50% | 33 (20.8) | 5 (41.7) |
50-80% | 24 (15.1) | 2 (16.7) |
>80% | 16 (10.1) | 0 (0) |
Unknown | 6 (3.6) | 0 (0) |
Area (s) of skin affected – n (%) NB: More than one response could be given | ||
Face/Neck | 129 (78.2) | 10 (83.3) |
Body | 110 (66.7) | 7 (58.3) |
Arms | 113 (68.5) | 8 (66.7) |
Legs | 109 (66.1) | 8 (66.7) |
Hands | 127 (77) | 10 (83.3) |
Feet | 113 (68.5) | 9 (75) |
I’d rather not say | 2 (1.2) | 0 (0) |
Other (responses included: under arms, genitalia and hair) | 35 (21.2) | 2 (16.7) |
Treatments used previously – n (%) NB: More than one response could be given | ||
No treatment | 57 (34.5) | 2 (16.7) |
Topical corticosteroid | 41 (24.8) | 3 (25) |
Protopic (Tacrolimus) | 46 (27.9) | 6 (50) |
Elidel (Pimecrolimus) | 6 (3.6) | 0 (0) |
Vitamin D derived cream or ointment (e.g. calcipotriol) | 5 (3) | 2 (16.7) |
UVB | 33 (20) | 5 (41.7) |
PUVA | 20 (12.1) | 2 (16.7) |
Not Sure | 1 (0.6) | 0 (0) |
Other (Responses included diet changes and alternative therapies) | 28 (17) | 3 (25) |