|
Responses completed on behalf of – n (%)
|
|
Themselves
|
149 (90.3)
|
12 (100)
|
|
Other
|
14 (8.5)
|
0 (0)
|
|
Child with vitiligo
|
13(92.9)
|
|
Spouse with vitiligo
|
1 (7.1)
|
|
Themselves and other(s)
|
2 (1.2)
|
0 (0)
|
|
Unknown
|
0 (0)
|
0 (0)
|
|
Age – n (%)
|
|
<5 years
|
1 (0.6)
|
0 (0)
|
|
5-16 years
|
10 (6.1)
|
1 (8.3)
|
|
17-30 years
|
17 (10.3)
|
2 (16.7)
|
|
31-45 years
|
43 (26)
|
3 (25)
|
|
46-65 years
|
55 (33.3)
|
3 (25)
|
|
> 65years
|
29 (17.6)
|
3 (25)
|
|
Unknown
|
10 (6.1)
|
0 (0)
|
|
Ethnicity- n (%)
|
|
White British
|
117 (70.9)
|
9 (75)
|
|
White Irish
|
1 (0.6)
|
0 (0)
|
|
Other White Background
|
15 (9.1)
|
0 (0)
|
|
Any Other Mixed Background
|
1 (0.6)
|
0 (0)
|
|
Indian/British Indian
|
9 (5.5)
|
1 (8.3)
|
|
Pakistani/British Pakistani
|
1 (0.6)
|
0 (0)
|
|
Bangladeshi/British Bangladeshi
|
2 (1.2)
|
1 (8.3)
|
|
Caribbean/British Caribbean
|
1 (0.6)
|
1 (8.3)
|
|
African/British African
|
1 (0.6)
|
0 (0)
|
|
Other
|
7 (4.2)
|
0 (0)
|
|
Unknown
|
10 (6.1)
|
0 (0)
|
|
Country of residence – n (%)
|
|
UK
|
135 (81.8)
|
11 (91.7)
|
|
USA
|
12 (7.3)
|
1 (8.3)
|
|
Europe (excluding UK)
|
3 (1.8)
|
0 (0)
|
|
Australia
|
1 (0.6)
|
0 (0)
|
|
Asia
|
1 (0.6)
|
0 (0)
|
|
Dual – UK and Other
|
2 (1.2)
|
0 (0)
|
|
Unknown
|
11 (6.7)
|
0 (0)
|
|
Duration of Diagnosis- n (%)
|
|
6-12 months
|
3 (1.9)
|
0 (0)
|
|
1-2 years
|
3 (1.9)
|
0 (0)
|
|
2-5 years
|
12 (7.7)
|
2 (16.7)
|
|
5-10 years
|
26 (16.8)
|
1 (8.3)
|
|
> 10 years
|
111 (71.6)
|
9 (75)
|
|
Percentage of skin affected (estimate) - n (%)
|
|
0-10%
|
37 (23.3)
|
1 (8.3)
|
|
10-25%
|
49 (30.8)
|
4 (33.3)
|
|
25-50%
|
33 (20.8)
|
5 (41.7)
|
|
50-80%
|
24 (15.1)
|
2 (16.7)
|
|
>80%
|
16 (10.1)
|
0 (0)
|
|
Unknown
|
6 (3.6)
|
0 (0)
|
|
Area (s) of skin affected – n (%) NB: More than one response could be given
|
|
Face/Neck
|
129 (78.2)
|
10 (83.3)
|
|
Body
|
110 (66.7)
|
7 (58.3)
|
|
Arms
|
113 (68.5)
|
8 (66.7)
|
|
Legs
|
109 (66.1)
|
8 (66.7)
|
|
Hands
|
127 (77)
|
10 (83.3)
|
|
Feet
|
113 (68.5)
|
9 (75)
|
|
I’d rather not say
|
2 (1.2)
|
0 (0)
|
|
Other (responses included: under arms, genitalia and hair)
|
35 (21.2)
|
2 (16.7)
|
|
Treatments used previously – n (%) NB: More than one response could be given
|
|
No treatment
|
57 (34.5)
|
2 (16.7)
|
|
Topical corticosteroid
|
41 (24.8)
|
3 (25)
|
|
Protopic (Tacrolimus)
|
46 (27.9)
|
6 (50)
|
|
Elidel (Pimecrolimus)
|
6 (3.6)
|
0 (0)
|
|
Vitamin D derived cream or ointment (e.g. calcipotriol)
|
5 (3)
|
2 (16.7)
|
|
UVB
|
33 (20)
|
5 (41.7)
|
|
PUVA
|
20 (12.1)
|
2 (16.7)
|
|
Not Sure
|
1 (0.6)
|
0 (0)
|
|
Other (Responses included diet changes and alternative therapies)
|
28 (17)
|
3 (25)
|
