Table 1 Key items recorded by the COPPAR registry
From: Rationale and Design of the Brigham Cohort for psoriasis and psoriatic arthritis registry (COPPAR)
| Variables | Physician Assessed | Patient Assessed |
|---|---|---|
| Socio-demographic | ||
| Demographics | ✔ | |
| Age | ✔ | |
| Education | ✔ | |
| Ethnicity | ✔ | |
| Psoriasis (PsO)/Psoriatic Arthritis (PsA) | ||
| First PsO or PsA Diagnosis | ✔ | |
| Family History of PsO and/or PsA | ✔ | ✔ |
| CASPAR | ✔ | |
| Physician Global (VAS) | ✔ | |
| General Health Features | ||
| Co-morbidities / Drug Toxicities | ✔ | ✔ |
| Cardiovascular Risk Factors | ✔ | ✔ |
| Infections/Opportunistic Infections | ✔ | ✔ |
| Surgical History | ✔ | |
| Smoking Status | ✔ | |
| Alcohol Consumption | ✔ | |
| Mental health (CESD) | ✔ | |
| Health Care Utilization | ✔ | |
| Medications | ||
| Current | ✔ | ✔ |
| Past | ✔ | ✔ |
| Changes | ✔ | ✔ |
| Start | ✔ | ✔ |
| Stop/reason | ✔ | ✔ |
| Change/reason | ✔ | ✔ |
| Peripheral Joint Assessment | ||
| 66/68 tender/swollen joint count | ✔ | |
| Patient swollen joint assessment (VAS) | ✔ | |
| Skin Assessment | ||
| Psoriasis Area Severity Index (PASI) | ✔ | |
| Body Surface Area (BSA) | ✔ | |
| Physician Static Global Assessment (sPGA) | ✔ | |
| Pain | ||
| Patient tender joint assessment (VAS) | ✔ | ✔ |
| Patient Global | ||
| VAS | ✔ | |
| Pain and Function | ||
| Multi-Dimensional Health Assessment Questionnaire (MDHAQ) | ✔ | |
| Health-related quality of life | ||
| European Quality of Life assessment (EuroQol) | ✔ | |
| Dermatology Life Quality Index (DLQI) | ✔ | |
| Psoriatic Arthritis Quality of Life (PsAQoL) | ✔ | |
| Enthesitis | ||
| LEEDS Enthesitis Index (LEI) | ✔ | |
| Dactylitis | ||
| Absent/Present | ✔ | |
| Spinal assessment | ||
| Absent/ Present | ✔ | |
| Bath Ankylosing Spondylitis Disease Activity Index (BASDAI) | ✔ | |
| Psoriasis Assessment | ||
| CAPP – Plaque Psoriasis | ✔ | ✔ |
| CAPP – Scalp Psoriasis | ✔ | ✔ |
| CAPP – Nail Psoriasis | ✔ | ✔ |
| CAPP – Inverse | ✔ | ✔ |
| CAPP – Palm/Sole | ✔ | ✔ |
| CAPP – Genital | ✔ | ✔ |
| Work Productivity | ||
| Work Productivity and Activity Impairment (WPAI) | ✔ | |
| Fatigue | ||
| Functional Assessment of Chronic Illness Therapy (FACIT-4) | ✔ | |
| Physical Activity | ||
| International Physical Activity Questionnaire (IPAQ) | ✔ | |