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Table 1 Key items recorded by the COPPAR registry

From: Rationale and Design of the Brigham Cohort for psoriasis and psoriatic arthritis registry (COPPAR)

Variables

Physician Assessed

Patient Assessed

Socio-demographic

 Demographics

 

✔

 Age

 

✔

 Education

 

✔

 Ethnicity

 

✔

Psoriasis (PsO)/Psoriatic Arthritis (PsA)

 First PsO or PsA Diagnosis

 

✔

 Family History of PsO and/or PsA

✔

✔

 CASPAR

✔

 

 Physician Global (VAS)

✔

 

General Health Features

 Co-morbidities / Drug Toxicities

✔

✔

 Cardiovascular Risk Factors

✔

✔

 Infections/Opportunistic Infections

✔

✔

 Surgical History

 

✔

 Smoking Status

 

✔

 Alcohol Consumption

 

✔

 Mental health (CESD)

 

✔

 Health Care Utilization

 

✔

Medications

 Current

✔

✔

 Past

✔

✔

 Changes

✔

✔

  Start

✔

✔

  Stop/reason

✔

✔

  Change/reason

✔

✔

Peripheral Joint Assessment

 66/68 tender/swollen joint count

✔

 

 Patient swollen joint assessment (VAS)

 

✔

Skin Assessment

 Psoriasis Area Severity Index (PASI)

✔

 

 Body Surface Area (BSA)

✔

 

 Physician Static Global Assessment (sPGA)

✔

 

Pain

 Patient tender joint assessment (VAS)

✔

✔

Patient Global

 VAS

 

✔

Pain and Function

 Multi-Dimensional Health Assessment Questionnaire (MDHAQ)

 

✔

Health-related quality of life

 European Quality of Life assessment (EuroQol)

 

✔

 Dermatology Life Quality Index (DLQI)

 

✔

 Psoriatic Arthritis Quality of Life (PsAQoL)

 

✔

Enthesitis

 LEEDS Enthesitis Index (LEI)

✔

 

Dactylitis

 Absent/Present

✔

 

Spinal assessment

 Absent/ Present

✔

 

 Bath Ankylosing Spondylitis Disease Activity Index (BASDAI)

 

✔

Psoriasis Assessment

 CAPP – Plaque Psoriasis

✔

✔

 CAPP – Scalp Psoriasis

✔

✔

 CAPP – Nail Psoriasis

✔

✔

 CAPP – Inverse

✔

✔

 CAPP – Palm/Sole

✔

✔

 CAPP – Genital

✔

✔

Work Productivity

 Work Productivity and Activity Impairment (WPAI)

 

✔

Fatigue

 Functional Assessment of Chronic Illness Therapy (FACIT-4)

 

✔

Physical Activity

 International Physical Activity Questionnaire (IPAQ)

 

✔