From: Rationale and Design of the Brigham Cohort for psoriasis and psoriatic arthritis registry (COPPAR)
Variables | Physician Assessed | Patient Assessed |
---|---|---|
Socio-demographic | ||
 Demographics |  | ✔ |
 Age |  | ✔ |
 Education |  | ✔ |
 Ethnicity |  | ✔ |
Psoriasis (PsO)/Psoriatic Arthritis (PsA) | ||
 First PsO or PsA Diagnosis |  | ✔ |
 Family History of PsO and/or PsA | ✔ | ✔ |
 CASPAR | ✔ |  |
 Physician Global (VAS) | ✔ |  |
General Health Features | ||
 Co-morbidities / Drug Toxicities | ✔ | ✔ |
 Cardiovascular Risk Factors | ✔ | ✔ |
 Infections/Opportunistic Infections | ✔ | ✔ |
 Surgical History |  | ✔ |
 Smoking Status |  | ✔ |
 Alcohol Consumption |  | ✔ |
 Mental health (CESD) |  | ✔ |
 Health Care Utilization |  | ✔ |
Medications | ||
 Current | ✔ | ✔ |
 Past | ✔ | ✔ |
 Changes | ✔ | ✔ |
  Start | ✔ | ✔ |
  Stop/reason | ✔ | ✔ |
  Change/reason | ✔ | ✔ |
Peripheral Joint Assessment | ||
 66/68 tender/swollen joint count | ✔ |  |
 Patient swollen joint assessment (VAS) |  | ✔ |
Skin Assessment | ||
 Psoriasis Area Severity Index (PASI) | ✔ |  |
 Body Surface Area (BSA) | ✔ |  |
 Physician Static Global Assessment (sPGA) | ✔ |  |
Pain | ||
 Patient tender joint assessment (VAS) | ✔ | ✔ |
Patient Global | ||
 VAS |  | ✔ |
Pain and Function | ||
 Multi-Dimensional Health Assessment Questionnaire (MDHAQ) |  | ✔ |
Health-related quality of life | ||
 European Quality of Life assessment (EuroQol) |  | ✔ |
 Dermatology Life Quality Index (DLQI) |  | ✔ |
 Psoriatic Arthritis Quality of Life (PsAQoL) |  | ✔ |
Enthesitis | ||
 LEEDS Enthesitis Index (LEI) | ✔ |  |
Dactylitis | ||
 Absent/Present | ✔ |  |
Spinal assessment | ||
 Absent/ Present | ✔ |  |
 Bath Ankylosing Spondylitis Disease Activity Index (BASDAI) |  | ✔ |
Psoriasis Assessment | ||
 CAPP – Plaque Psoriasis | ✔ | ✔ |
 CAPP – Scalp Psoriasis | ✔ | ✔ |
 CAPP – Nail Psoriasis | ✔ | ✔ |
 CAPP – Inverse | ✔ | ✔ |
 CAPP – Palm/Sole | ✔ | ✔ |
 CAPP – Genital | ✔ | ✔ |
Work Productivity | ||
 Work Productivity and Activity Impairment (WPAI) |  | ✔ |
Fatigue | ||
 Functional Assessment of Chronic Illness Therapy (FACIT-4) |  | ✔ |
Physical Activity | ||
 International Physical Activity Questionnaire (IPAQ) |  | ✔ |